Showing posts with label microcephaly. Show all posts
Showing posts with label microcephaly. Show all posts

Saturday, January 28, 2012

Nature Vs. Nurture

I remember during my early college days, there were many cases and examples of "nature vs. nurture" in my human development classes.  Never in my wildest imagination would I have predicted that I would live out a case study of "nature vs. nurture."

You see...this past Thursday Luke had an appointment....a BIG appointment at Legacy Emmanuel Children's Hospital "pediatric genetics."  To Luke this was just ANOTHER appointment in a hospital he is all to familiar with.  His biggest worry was "mom...am I going to have to get my heart surgery today?"  Poor baby is worried they are going to operate on him.  Right hospital...wrong office.  But to his credit, pediatric cardiology is only 2 doors away.

After checking in we waited to be called back.  The nurse came out and called Luke.  Mark and I followed him back to the room where they weighed, measured and took vitals on him.  Then into "exam room 5" we went.  I sat down and it ALL came flooding back.  7 years ago almost to the day, I sat in the same chair, with an almost 2 year old "Eugene" and his birth parents.  We sat for nearly an hour as they recounted their entire genetic history and I wished I had a notebook to write everything down.  You see the Department of Children and Family Services wanted this appointment conducted before we moved forward with the adoption.  It was an eye opening experience to be flooded with information about your child's history.  That day I met Dr. Anidiotis, and this past Thursday we met again...only under different circumstances. 

It had been recommended to me by 2 doctors to go and see our geneticist again.  They wanted to know if they could find a link between all of Luke's health issues.  More specifically, was there a genetic link between microcephaly and glaucoma. 




So we sat and I recounted to Dr. Anidiotis Luke's recent health history, his diagnosis' and IEP goals and plans.  After a thorough examination of Luke, the doctor looked at me square in the eye and said, "I CAN'T believe how WELL he is doing!  To be honest, seeing the parents and seeing the genetic make-up, I never thought Luke would be doing as well as he is doing."  He went on to tell us that Luke is the very heart of NATURE VS. NURTURE.  The doctor said that given the "nature" of his genetic make-up it is a MIRACLE that Luke is doing "grade level" work and reading at grade level.  The doctor said that he just can't believe he is functioning so well. 


Luke with his bio sisters (Alysha and Jenna)

Of course, as I have worked with so many different doctors over the years, they always give you the good with the bad.  They are always quick to remind you of the negative and the things that bring you right back down to earth.  The doctor was quick to say that Luke's next year in school would determine how well he will do in understanding "abstract" concepts.  Apparently in the fourth grade learning concepts switch from concrete to more abstract, and the key to Luke being able to live on his own will be how he can handle the abstract concept of money.  Great...the last thing I want to think about right now is Luke living on his own, money, and abstract concepts.  Whatever... Luke has proved his predictions wrong so far...I think I will just side with Luke and his ability to achieve the impossible. 

Friday, November 11, 2011

Black Belt Training



He's back.....and he's in black!!!! Luke has officially upgraded to "Black Belt Training."  After having about 2 months off, Mark and I noticed that Luke was more "bouncy" at home, and tending to be hyper more often.  I wondered if there was a connection between more hyperactivity and karate.  So I did what I always do....I Googled!  After several hours of extensive google research (insert a giggle here), I did find that YES there is a connection.  In fact, karate, or martial arts, is the number one activity for children who have ADHD.  They are more successful in martial arts, than say baseball.  Mainly because it requires them to focus and allows them channel their punching, kicking, and oh yes..yelling in a positive appropriate manner.  Swimming is also another great activity for children with ADHD.  The resistance of the water and full body involvement including sensory systems is an excellent activity for kiddos like Luke.  Baseball would be more difficult...per say...for Luke, because there is so much "down" time in the game.  I can see him out in left field day dreaming or doing his own thing only to miss the game.  Not to say we won't try, but there is a definite therapeutic benefit to Luke by participating in karate.  I told Mark that I want to approach karate like we approach therapy.  Because I honestly believe that is what it is for Luke.  It helps him to be calmer, motivated, greater self control and focus.  He also sleeps better.  Plus...his karate is sooooo positive.  They learn character traits and participate in character building activities.  The instructors are awesome and are super sensitive to Luke's special needs (as in ordering him a special helmet because of his microcephaly). 




So HE'S BACK!!! And LOVING being in the BLACK BELT TRAINING class.  We are proud Luke!!!!

Life At The Dahlhouse: Disneyland Style

In November, we were able to take a family vacation to Disneyland and to visit my brother, David and sister, Katie.  We enjoyed several m...